Skip to main navigationSkip to main content

What you need to know

Our Turn to Speak is a national survey that seeks to understand the life experiences of people living with severe and complex mental health issues in Australia. In order to advocate for better support and improved social outcomes for people affected by these issues, we are looking for a sample of 7,000 respondents who reflect Australia’s diverse population.

Why your experience is important

Whether your life experiences have been positive or negative, your perceptions of how your experience of mental health issues has impacted the way you are treated in life will help us better understand where change is needed.

With its particular interest in the perspectives of those living with severe and complex mental health issues, Our Turn to Speak is the largest survey of its kind conducted in Australia.

The findings will support SANE Australia and its partners to advocate for the needs of people living with severe and complex mental health issues.


To be eligible to take part in the Our Turn to Speak survey, you must be an Australian resident, aged 18 and over, who has been living with at least one of the following severe and complex mental health issues over the last 12 months:

  • Schizophrenia spectrum disorders (such as schizophrenia, schizoaffective disorder or schizophreniform disorder),
  • Bipolar and related disorders,
  • Personality disorders (such as, but not limited to, borderline personality disorder),
  • Obsessive-compulsive and related disorders (such as OCD, body-dysmorphic disorder, excoriation disorder, trichotillomania or hoarding disorder),
  • Post-traumatic stress disorder,
  • Dissociative disorders,
  • Eating disorders (such as anorexia nervosa, bulimia nervosa, avoidant/restrictive food intake disorder, and binge-eating disorder),
  • Severe and treatment-resistant depression and anxiety requiring multi-agency support.

We are seeking responses from people who have received a formal diagnosis, as well as those who have not been diagnosed formally, but believe they may be experiencing one of these mental health issues.

Your privacy

All responses to the Our Turn to Speak survey are confidential, subject to some legal limitations. Before you begin the survey, you’ll be asked to read some further information via a Plain Language Statement which explains this in further detail and then consent to participate in the study.

At the end of the survey, if you consented to receiving information about future related research, your contact details will be stored separately to your survey responses. This means your answers to the survey questions will remain anonymous and will not be linked to your contact details unless you provide such consent.

Responses to the survey can only be accessed by SANE Australia and University of Melbourne research team members named on this form.

Participation in this research is completely voluntary. You are free to choose whether or not to participate. If you choose to participate, but later change your mind, you are free to withdraw from the study at any time.

Need mental health support?

If you need support, visit our support page to find available services.

For urgent assistance call Lifeline on 13 11 14, or 000 if there is an emergency.

Get support home
Anne Deveson Research Centre home
Melbourne School of Psychological Sciences home

© 2020 SANE Australia. All rights reserved.

SANE Australia acknowledges the Aboriginal and Torres Strait Islander peoples as traditional custodians of the land on which it operates, and pays respect to Elders past, present and emerging. SANE is committed to providing a safe, culturally appropriate, inclusive service for all people, regardless of their ethnicity, faith, disability, sexuality, or gender identity.

Need support?

The SANE Help Centre provides the information, guidance, and referrals you need cdkfto manage mental health concerns.

Crisis Support

SANE Helpline

Talk to a mental health professional (weekdays 10am-10pm AEST). For urgent assistance call Lifeline on 13 11 14, or see Crisis Support on this page.

Helpline Email

Get in touch via this form or email

SANE Forums

Join the discussion on the SANE Online Forums for information and support. Anonymous and moderated 24/7.

For people living with mental illness

For family friends and carers

Mental health information and advice

For extra resources such as factsheets, guides and crisis support, visit the SANE Australia website.